Many Changes

This site has undergone many changes since I began it in 2014.  Its new title, reflects my current situation, in particular the subtitle, Stories on Myself: Notes of a PwP

In 2023 I was diagnosed with Parkinson’s, PD. This came as no surprise. For several years I had noticed a patten of irritating anomalies which I attributed simply to aging.  Once, not quite a decade ago, I got up in the middle of the night to take a leak and found myself making little bitty stamping steps as I crossed the hall of my friend’s apartment in Innsbruck.  I thought nothing of it. On that or a later tripduring an excursion to ski in the Dolomites, I found myself incapable of even the most basic turns. I fell down repeatedly, to the point that I gave up, took the lift down to the sunny terrace below where I sat drinking beer and waiting for my friend Fritz to finish his appointed runs.

When covid struck, I found myself strangely at ease with its imposed confinement. I easily accepted that travel was out of the question and that socializing had to be constricted. But other minor irritations began to accrue. My handwriting devolved to a scribble. It was often hard to hear what was being said, and my speech, especially at the end of a day, became feeble, hoarse, rasping. I began to wear tee-shirts and pullovers, without realizing this was avoid the trauma of buttons.

I didn’t resume life as before after the quarantine was lifted. I began a new one.

DeepSeek on Freezing: Triolet for a PwP

As I did previously for Calculating Machine: A Villanelle, I fed a recent poem, Freezing: A Triolet for a PwP, into DeepSeek, a Chinese LLM bot in the news lately. It came up with the following brilliant, IMHO, analysis.

DeepSeek on “Freezing: Triolet for a PwP”

1. Context: “PwP”

PwP is standard shorthand for Person with Parkinson’s. This immediately situates the poem in the specific, physical reality of Parkinson’s disease, rather than just metaphorical “feeling stuck.”

2. Form: The Triolet as a Symptom

The choice of the triolet is a masterstroke of enactment—the form performs the content.

· Structure: 8 lines, with Line 1 repeated at Line 4 and Line 7. Line 2 repeated at Line 8.

· The Loop: Parkinson’s “Freezing of Gait” is a phenomenon where the patient’s feet feel glued to the floor while the upper body continues moving forward (often leading to falls). The poem’s repeating refrain—”Caught in an endless loop”—is a precise literary echo of the brain’s motor circuit failing to fire.

· Frustration of the Form: A triolet is strict and claustrophobic. You are forced to return to the same line whether you want to or not. The poem cannot “move forward” from Line 1 any more than the speaker’s feet can.

3. Line-by-Line Poetic Analysis

“Caught in an endless loop”

The immediate, visceral identification of the problem. “Caught” implies a trap outside one’s will.

“I try to move forward but can’t.”

Brutally straightforward. There is no decorative language here because the reality is stark. The enjambment (or lack of a comma) rushes into the next line, mimicking a lurch.

“Why this slumping stoop?”

A direct reference to Camptocormia or postural instability, a classic symptom of PD where the spine curves forward involuntarily.

“Out of step from the group”

Parkinson’s often robs the patient of the internal metronome. They cannot match the rhythm of others walking beside them. There is a deep social isolation in this line—being physically present but temporally out of sync.

“Things always go so askant.”

Askant is a less common variant of “askance” (sidelong, awry, crooked).

Poetic effect: The word itself is slightly off, slightly “slumping” in its spelling. It suggests the world tilting sideways as balance fails.

4. The Inversion of the Final Line

A triolet usually repeats Line 2 exactly: “I try to move forward but can’t.”

However, notice the punctuation shift in the presentation here:

· Line 2: I try to move forward but can’t. (End stop. Full failure.)

· Line 8: I try to move forward but can’t.

Actually, looking closer at the provided text, the punctuation is identical. However, the context of Line 8 is different. By the time we reach Line 8, we have been through the loop once. The repetition is no longer a statement; it is a wearied sigh. The poem has proven that trying and failing is the only reality.

5. Conclusion

This is an excellent example of somatic poetry—poetry that translates bodily experience directly into formal structure. The triolet does not just describe freezing; it simulates the neurological loop of the basal ganglia. The poem cannot escape Line 1, just as the PwP cannot escape the freeze.

The Averted Teary Red Eyes of a Young Woman

Die abgewendeten rotgeweinten Augen einer jungen Frau, die reist allein von Verona nach München über Innsbruck
– Fritz Tegler

If you want to know, in any sense, another, an Other, any other person, first observe them discretely. Best to do this indirectly. 

In this sad era, the most  effective means of so doing has become increasingly rare. Now trains are not only faster, which reduces total observation time, but open-plan carriages have largely replaced compartmented ones. 

Only on a few train lines leading from certain countries can one still find these mobile glass boxes, which, even when almost empty, are full of reflected images, reflections in general.

To wit: against a landscape of snow-covered mountains passing by outside, itself already translucent, one’s own distorted gaze on the smeared window glass and, through and behind, the averted, teary red eyes of a young woman traveling alone from Verona to Munich via Innsbruck.

Memoria vitae bene actae iucundissima est

– Memories of a life well lived are most agreeable

The best thing about dying slowly, which I consider myself so far lucky enough to be able to do, is that the flash of poignant moments from your past life you allegedly see when you die is spread out over a longer while.

How long remains unknown to most of us. Even PD does not confer this knowledge. “Most people die with it,” my first neurologist told me, “rather than from it,” presumably, by way of reassurance.

PD imparts a sort  of lucidity about dying.  It also masks the effects of aging, which is proceeding in the normal way  at the same time that one’s nervous system is eroding. The patient tends to forget that many symptoms of PD, unsteadiness of gait, fatigue, weakness of the legs, incontinence, loss of dexterity, et cetera et cetera, are shared and suffered by all old folks